Monday 24 April 2017

24.4.17 // CIDP update, after 6 years. :)

Hello!


I'm working tomorrow but I really wanted to write a post because it felt like I hit a really huge milestone in my (health) life. :)

Backstory:
I was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) in 2011.
It's an autoimmune disease concerning the nerves.
Basically, it's similar to Guillian-Barre Syndrome, except that it is chronic hence the weakness and effects hit at a slower pace and over a longer a period of time until it hits its' peak.
I was 16 then.

Here & now:
I am 22 years of age now.
Completed my 'O' Levels, Diploma and currently a full-time working adult, a teacher to tiny humans. :)
Today, I had an appointment with my Neurologist.
A different doctor called me in and checked up on my muscle strength and reflexes.
My main doctor then came in and the doctor who checked me said that I've maxed up on all of it.
(They used their terms which I kinda already got a little hang of cause I've been hearing it a million times.)
So there it is.
From my understanding, I've hit 100% recovery.
I've regained everything I've lost.
The doctors also shared that not everyone with CIDP recovers fully, and that I'm the lucky few, and that it is rare.

//

It has been a long, long, long 6 years.
3 years with medication and 3 years without.
Bearing in mind that the side effects of the medication actually hindered the external physical recovery process.
It sorted out the issues inside, but brought the outside other issues as well.
And to be honest, it's rather funny how the medications and treatment process were an entire battle on its' own.
Really, it was.

Also, just the start of April this year, I had begun to work on my strength.
& I really think it affected the results today.
Just one month made all the difference?
Well then bring on the next month, and the next. :>

There had been days where I felt that this body, my body, was broken beyond repair.
That I just don't know what this vessel I had of a body was anymore.
Because 6 years ago I completely lost all control of it.
All of it.

& so that explains how huge of a milestone this is for me.
The feeling of being in (total) control of my body once again.
It's amazing.

Life is amazing.

I still have so many thoughts, but for now..
Alhamdulillah.
Thank you Allah swt.
Thank You.

In shaa Allah everything gets even better from here.

Du vet jeg elsker deg.
Goodbye

PS If you know anyone who has CIDP...hit me up? Maybe we can learn a thing or two from each other. :)